Archive | February, 2013

Conversations with Margaret – part 3

17 Feb

Margaret
Dear Margaret,
Sorry i have been knee deep in this big move……been thinking so much about you and sending big light love and healing!!!!!

I am back in that little village when first we began our online friendship…..
I realise that I do not even have a foto of you…..
Please send one so i can envision BIG HEALING…..for us both!!!!

Onward Ho!- Speak soon,

xxxPauline
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09/03/12
Dear Pauline,
Really good to hear from you! Hope the move went well? Taking longer to get over pleural effusion than anticipated. CT scan not good as bones and liver now positive. Thank you for healing thoughts… really good to know.
Will try and send picture when can get to grips with computer!
Take care,
Love Margaret.
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12/03/12
Hi Margaret,
Just a quick one also as still in the little internet cafe…….
I thought perhaps you were struggling and as you know i am sending lots of good vibrations!!!
This week has been a mixture of positive and negative for me also as javier and i attempt to overcome what life throws at us…..I blame it all on the moon…….and apparently we are heading for a glorious golden trine…….not sure what that means but lets think miracles!!!!!!
Speak soon then and lets beat this darn thing eh!!!!!!

much love,
Pauline
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Perhaps the beginning of a sea change in cancer treatment?
Subject: Fwd: Cancer Update from Johns Hopkins
From: margaret
Date: Fri, 1 Jun 2012 18:16:14 +0100
You prob know all this already but just in case useful….x M
Sent from my iPhone
Begin forwarded message:
Subject: Fwd: Cancer Update from Johns Hopkins
The following is a very interesting article from Johns Hopkins in Baltimore . Johns Hopkins is one of the Top 3 cancer treatment hospitals in the US (as ranked by US News & World Report). The following article talks about how cancer cells form, and some alternative methods of preventing cancer. This is pretty big news, as Johns Hopkins has never really acknowledged any “alternative” methods of treatment or prevention.
Johns Hopkins Update –
AFTER YEARS OF TELLING PEOPLE CHEMOTHERA PY IS THE ONLY WAY TO TRY (‘TRY’, BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY…

1. Every person has cancer cells in the body. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size.

2. Cancer cells occur between 6 to more than 10 times in a person’s lifetime.

3 When the person’s immune system is strong the cancer cells will be destroyed and prevented from multiplying and forming tumors.

4. When a person has cancer it indicates the person has multiple nutritional deficiencies. These could be due to genetic, environmental, food and lifestyle factors.

5. To overcome the multiple nutritional deficiencies, changing diet and including supplements will strengthen the immune system.

6. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone marrow, gastrointestinal tract etc, and can cause organ damage, like liver, kidneys, heart, lungs etc.

7. Radiation while destroying cancer cells also burns, scars and damages healthy cells, tissues and organs.

8. Initial treatment with chemotherapy and radiation will often reduce tumor size. However prolonged use of chemotherapy and radiation do not result in more tumor destruction.

9. When the body has too much toxic burden from chemotherapy and radiation the immune system is either compromised or destroyed, hence the person can succumb to various kinds of infections and complications.

10. Chemotherapy and radiation can cause cancer cells to mutate and become resistant and difficult to destroy. Surgery can also cause cancer cells to spread to other sites.

11. An effective way to battle cancer is to starve the cancer cells by not feeding it with the foods it needs to multiply..

*CANCER CELLS FEED ON:

a. Sugar is a cancer-feeder. By cutting off sugar it cuts off one important food supply to the cancer cells. Sugar substitutes like NutraSweet, Equal, Spoonful, etc are made with Aspartame and it is harmful. A better natural substitute would be Manuka honey or molasses, but only in very small amounts. Table salt has a chemical added to make it white in color. Better alternative is Bragg’s aminos or sea s alt .

b. Milk causes the body to produce mucus, especially in the gastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and substituting with unsweetened soy milk cancer cells are being starved.

c. Cancer cells thrive in an acid environment. A meat-based diet is acidic and it is best to eat fish, and a little chicken rather than beef or pork. Meat also contains livestock antibiotics, growth hormones and parasites, which are all harmful, especially to people with cancer.

d. A diet made of 80% fresh vegetables and juice, whole grains, seeds, nuts and a little fruits help put the body into an alkaline environment. About 20% can be from cooked food including beans. Fresh vegetable juices provide live enzymes that are easily absorbed and reach down to cellular levels within 15 minutes to nourish and enhance growth of healthy cells. To obtain live enzymes for building healthy cells try and drink fresh vegetable juice (most vegetables including bean sprouts) and eat some raw vegetables 2 or 3 times a day. Enzymes are destroyed at temperatures of 104 degrees F (40 degrees C).

e. Avoid coffee, tea, and chocolate, which have high caffeine. Green tea is a better alternative and has cancer fighting properties. Water-best to drink purified water, or filtered, to avoid known toxins and heavy metals in tap water. Distilled water is acidic, avoid it.

12.. Meat protein is difficult to digest and requires a lot of digestive enzymes. Undigested meat remaining in the intestines becomes putrefied and leads to more toxic buildup.

13. Cancer cell walls have a tough protein covering. By refraining from or eating less meat it frees more enzymes to attack the protein walls of cancer cells and allows the body’s killer cells to destroy the cancer cells.

14. Some supplements build up the immune system (IP6, Flor-ssence, Essiac, anti-oxidants, vitamins, minerals, EFAs etc.) to enable the bodies own killer cells to destroy cancer cells.. Other supplements like vitamin E are known to cause apoptosis, or programmed cell death, the body’s normal method of disposing of damaged, unwanted, or unneeded cells.

15. Cancer is a disease of the mind, body, and spirit. A proactive and positive spirit will help the cancer warrior be a survivor. Anger, un-forgiveness and bitterness put the body into a stressful and acidic environment. Learn to have a loving and forgiving spirit. Learn to relax and enjoy life.

16. Cancer cells cannot thrive in an oxygenated environment. Exercising daily, and deep breathing help to get more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer cells.

1. No plastic containers in micro.

2. No water bottles in freezer.

3. No plastic wrap in microwave.

Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter Reed ArmyMedical& nbsp;Center as well. Dioxin chemicals cause cancer, especially breast cancer. Dioxins are highly poisonous to the cells of ou r bodies. Don’t freeze your plastic bottles with water in them as this releases dioxins from the plastic. Recently, Dr.. Edward Fujimoto, Wellness Program Manager at Cast le Hospital, was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us. He said that we should not be heating our food in the microwave using plastic containers. This especially applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead, he recommends using glass, such as Corning Ware, Pyre x or ceramic containers for heating food You get the same results, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper isn’t bad but you don’t know what is in the paper. It’s just safer to use tempered glass, Corning Ware, etc. He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper. The dioxin problem is one of the reasons.

Also, he pointed out that plastic wrap, such as Saran, is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food. Cover food with a paper towel instead.

This is an article that should be sent to anyone important in your life.

<strong>This was the last I was to hear from Margaret

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A few weeks later I heard from her husband John with the news of Margaret’s passing.

Dear Pauline,
Am sorry to have to tell you that Margaret died in Farleigh Hospice in Chelmsford on 1st July.

She was simply overwhelmed by high calcium levels, a pleural effusion with a second one on the way and the cancer suddenly racing ahead as she became weaker and oxygen levels dropped.

It was all so sudden and unexpected. Treatment seemed to be holding the cancer at bay and we were quite optimistic. Funeral on 12th July.
Thank you for all the support and shared thoughts with Margaret,
John.
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It was so sad to hear that Margaret had lost her fight with this darn disease. At the time I was going through my own drama preparing for the operation that would remove the chest wall recurrence which I wrote about when I first started this blog. It would be quite a while before I was able to contact John with the hope of giving some kind of support through his grieving.

26/11/12
Dear John,
I have thought to contact you several times since Margaret ‘went on ahead’ as it were, but each time words just did not make the page. it is at least a full year the grieving process and I can only hope that you keep the warmth of the love that you both shared close at hand for it truly never dies……

I recently set up a blog to try to continue where my book left off. Both margaret and I found each other at transitional times in our lives and I believe we both held the same values and desires to help change the system to welcome more variety of ‘choice’ within the NHS etc etc……

Just recently by accident really I found my name mentioned in this letter sent to chris woollams and I assumed it to be yourself with the name changed to Brian. It was an excellent statement and reminded me of how well both you and margaret spoke and wrote and how much knowledge the both of you collected over your journey.

I know that margaret’s work is not finished….she has greater influence from out there with the masters…..
hope to hear from you
pauline
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26/11/12
Dear Pauline,
Thank you for writing to me and for your kind thoughts. Hope that you are continuing the good fight and making progress!

I have written to Chris Woollams about Margaret, very soon after her death and in a rather confused and angry state…but got no reply.
I am waiting to hear from CancerActive on the subject of bisphosphonate treatment encouraging bone to secrete a growth hormone which the cancer laps up and utilises to grow: precisely the opposite of drug company ‘research’ which indicates that it holds cancer back.

Margaret was put onto the Liverpool Care Pathway. She went into our local hospice for a couple of days respite care, to be re-hydrated and for me to sleep… They simply kept her in and put her on the LCP against all of her wishes (and my protests) for an un-medicated death at home. A misnomer if there ever was one. It is a cruel and prolonged death under light sedation whilst deprived of food and water. I protested and was told …’it’s is a medical decision’ and …’unless you have power of attorney there is nothing you can do about it’….She took four days to die. Clearly suffering all of the time. I was with her almost 24 hours of the day.So was my daughter, Kate.

I did not fully understand what would happen and had no choice but to trust the hospice doctors. There are no consent forms. Doctors have this power! The Daily Mail has been running a campaign for most of October and half of November against the LCP. That made me realise that I was not alone in my experience. Not that my experience is what mattered – Margaret was put through hell and any questioning of the process was met with bland statements that ‘she wasn’t suffering’ and they knew what they were doing… all straight out of a Kafka story. Not something I shall ever cope with or come to terms with. It will haunt me until I die.
Am demanding a written explanation from the Hospice and they are being as slow as they can about it.

Do research the LCP on the www. ‘Google’ …”Liverpool Care Pathway” … and you’ll come up with lots of information : doctors for and against and pressure groups. It is a money-saving process designed to kill of the elderly and sick quickly to save the NHS money. Hospitals get a bonus if they hit targets, like vaccination targets! We live in a wicked world we live in with big pharma cynically exploiting us for profit.
Best wishes,
John.

I was so shocked to hear about what happened to Margaret on the LCP, especially since she had fought so hard to heal the cancer holistically. I still maintain that there is no ‘one ‘ way to treat cancer. It is such an individual journey, and I would never advise anyone on which route to take. I just wish there was more choice, and more acceptance of the road less travelled…
I am grateful to John for continuing to research and report on some of these roads, despite this very difficult time. He was very kind to send me this photo of Margaret at the head of this page, so that I can finally put a face to her brave and determined spirit.
Thank you Margaret

Conversations with Margaret (part 2)

10 Feb

Part 1 of my conversations with Margaret can be found in the previous blog- World cancer day.
Margaret was such a bright and articulate being, and the brief time we had sharing what we had gleaned through our search to find more holistic methods of healing our breast cancer, was indeed very positive for both of us. Even though we had never met, we were both passionate in wanting to bring about better more humane choices for treatment within the NHS.
Connecting with women like Margaret was part of the reason I started this blog…..

Hello Pauline
…we will get to speak to each other eventually! And please when we do allow me to ring you back since it is not fair to expect you to pay for the call, since you are doing me an enormous favour!

……Have been putting tumeric jelly on wound for two days with great results so very heartened and no longer stressing. I think part of the problem was that I had absolutely no warning of what to expect after treatment and only saw it after I had returned home the day after treatment. Dr Giesen doesn’t seem to be hot on aftercare, althouh he did ask if I had a nurse at home – now I know why!

I do appreciate your reassurance and thanks again for contacting me.
Take care
Margaret

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Date: Fri, 28 Oct 2011 19:37:39 +0200

Hi Margaret,
I was using turmeric for a while also – but I think I overdid it as I used just the powder and it seemed to irritate – then I went thru a phase of putting manuka honey….

I do remember my doc in malaga saying that because of the nature of the galvanic treatment- electric current – that the wound did not need much care after – but that was diectly after – and I agree that the sight of the wound can be a bit scary – Are you still having excretion? Mine went on for months – but in my case it was most of the breast that was coming out as I did not have a masectomy.

As a matter of interest how many sessions did you have and what does Giesen charge for each session of ECT and did you have anything to anaesthatise you?

I had about 12 sessions over 9mths – 3hrs each- the 1st 2 were 500 euros then 300 each after that – just topical numbing and some diazapan in my case but were I to do it again I would opt for more pain relief.

I am considering going to Malaga next week to see my doctor as it’s been a while and I know she was anxious to do some hyperthermia – I have been putting it off hoping that everything would just settle down and with all the regime I am doing, but I know that I have been under some duress lately trying to do too much- so I shall keep you posted as to what I do.

I did go to a German hospital with a friend in August – Dr. ursula (?) it was more to assist my friend but I was supposed to get some hyperthermia there – unfortunately the technician got ill and I missed out. The Klinic – was a great experience and I got to do a lot of detoxing and trekking thru the forest picking blackberries and the doctor gave me some agaricus phalloides d4 – mushroom tincture which I must get more of – also met a lot of like minded people choosing more alternative ways to combat their disease. She also uses targeted chemotherapy but I must say – so far I have drawn the line on that but lately I see that the targeted approach is becoming more the thing to do.

I passed my 10yr mark last week and am still going strong – so I think all that I am researching at present is to help pave the way for the future of what surely must be big change in the system – as I just cannot afford a lot of what I know is really good re supplements etc; and I think its criminal that there are not more natural choices available on the NHS…..Oh oh…..I’m rambling……..

lets cross monday off the list then if u r off to see ziggy……have a good one and spk soon
…..I know u are like me with computers so don’t feel pressured to answer…..

Keep up the good work,

xPauline
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Hi Pauline,

Just a quick ‘Hello” as off out again today but I did want to thank you for your emails.

Whilst I can remember what you said I wanted to answer the direct questions. Gieson charges 300 euros for galvano treatment, which I guess given that you had your’s some time ago is quite reasonable. However as he does loads of other things alongside over 3 days (ozone, vit C and colour laser infusions) you have spent nearly 3000 euros! I certainly do not have the money to carry on at these prices.

However I must tell you that he combines photodynamic treatment with Galvano treatment. I had my two tiny tumours blasted by PDT on the Tuesday and he then did the needle galvano on the Thursday when the site of the tumours just erupted. I managed 2 hrs 40 mins. Local anaesthetic to start with then when it got so bad a pain killing infusion of something which didn’t touch it. I don’t know how yours was managed technically but you can see the progress of the treatment on the computer screen – I did eventually work out how to read it and there is one line which shows how much cancer is being attacked. I should explain he builds all his own equipment because he was an engineer and only qualified in medicine about 6 years ago. There are two types of galvano the other of which I have had 6 treatments is by applying electrodes to the body front and back near the tumour which only has the side effect of burning you at the site of the electrodes over the three hours if the voltage is too high. Again it shows on the screen the amount of cancer it is attacking and the progress on subsequent occasions. If you don’t have cancer no connection is made apparently between front and back and you can tell from the screen there is none to attack.

However the jury is still out as to whether he is an amazing genius or frankly mad!

Good news though is that yesterday Ziggy told me that the UK NHS is getting it’s act together on PDT when I asked whether I should return to Gieson. I got the impression that if he was considering that I should do it for the first time now he would advise me to find out more about the UK treatments as much has happened over the last 6 months, especially at the hospitals in the University College Hospital Trust group in London. I shall let you know what I find out over time

The tumeric really changed things on the wound – almost too much, so i am back on the honey., There was hardly any exudate until I put the tumeric on! But then I only have a thing layer of skin over the chest wall around the site.

Sorry if I have repeated myself. Thanks also for all the info in the other email. There is so much happening now – things do have to change – I regard it it as just keeping going and doing as much as I can and waiting for the developments which must come….

Yes we will speak and I do look forward to it…..

Take care

Margaretx
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01/11/11
Wowie……thanks Margaret for the in depth info!!!!!
It brings a lot of stuff home to me hearing of all you went through – I agree – 3000 a pop is something none of us should be having to pay _ Yes – my doc in malaga had been an engineer before turning to medicine in an attempt to heal his wife over 15yrs ago……..I suppose there is a fine line with the madness label – he was very passionate. However – he left the practice a yr or so back and the doctor is a brilliant woman who is also very spiritual and altho I speak Spanish her nurse speaks English.

Since my recurrence I have been wondering if I should do another ECT and also Hyperthermia which she did not have before……(Last I spoke to her she did say that there were no guaranties of course but I like you do not want to and cannot afford to keep having to go back and forth forever….so your news on the NHS is comforting….

A big THANK YOU in regards to Ziggy and the NHS news – I shall get on to it also – You are right – things have to change!!! Perhaps we need to get some press going- It’s been on my list for quite a while now but it always falls on the back burner, but I am involved in a legal case with the NHS because they wanted to close down the Homeopathy dept on the wirral. Luckily I could get Legal aid and the http://www.nothwestfriendsofhomeopathy used me to fight the case. The solicitors involved are Leigh day Young and considered very ethical – perhaps I can get some advice there…..

…..(.Let’s talk about how we can do that)

I had a weepy night last night feeling sorry for myself – but I think the tears were just part of the old wounds stuck there and testing my faith.

Today after my coffeee I feel better as always and since it is a fiesta here being All Saints day I am taking it easy and doing some catching up.

I shall certainly delve into google now to see what gives with the NHS and photodynamic therapy. I had been in touch with the Royal free last yr as they are doing tests with PDTon women recently diagnosed. They closed the door to me as I do not fit any category.

By the way do you know the site http://www.killingcancer.com

– they are moving things on!

ok…..enjoy your day and speak soon,

love,
Pauline
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01/11/11
Hi
I hadn’t expected a reply when I came on the net tonight. I wanted to email you since this afternoon i went to see Dr Christopher Etheridge a briliiant doctor, scientist and herbalist. He no longer practices as a doctor as he jumped ship and qualified as a herbalist some time ago. I can’t send you his website since I don’t know how, but if you google him you will find him, Anyway I have been seeing him for 2 years – he sent me to Ziggy for infusions.

I will now get to the reason i am sending this. His knowledge of what’s going on in the UK oncology scene may be a bit more comprehensive than Ziggy’s and whilst he agreed PDT is now being used and there is great interest in it the surgeons cannot get the funding to do it and have to set up charities to get it. I sort of knew this and it maybe Ziggy knows more since he works at the London Homeopathic Hospital (by a weird coincidence my daughter had been taking my granddaughter to him for 2 years before I went to see him at his clinic in Sussex!). Anyway he is technically a consultant in the UCHL trust and has his ear to the ground. Chris felt that although PDT may well be possible in the Uk for the treatment I’m looking for, it would have to be on a private basis here at present because of the lack of funding. Sorry if I gave you false hope, all we can say for certain is that there is tremendous interest here among some surgeons as they know it can work.

However he has had experience of seeing patients who have had galvano treatment in Germany and said that my wound showed that the treatment had worked well and far from being a disaster it looked like a success. He also advocated the use of tumeric and honey. He has reassured me over Giesen since it does appear he knows what he is doing and is also very passionate about it.

I really admire you for supporting the homeopathic cause and yes things really should change. I do worry about drawing attention to the ‘good guys’ via the press etc. as they are so vulnerable. When I was seeing Patrick Kingsley 5 years ago now he had to retire because a patient of his reported his GP to the GMC because the GP refused to follow Patrick’s advice. Patrick always wrote to the patient’s GPs. As a result the GMC who had been waiting for years to get him used it as an excuse to haul him over the coals. Patrick fought the case for two years and won but he didn’t come back into practice, instead he does loads of lecturing etc. I went to another doctor who really was no good and I later got a recurrence. I think it is shocking that these people have to practice in fear and basically it has to be the patients who fight their cause – how to is the problem. You of course have found one way by being the perceived ‘victim’ of the closure of the department. I tried to get on the website but it won’t come up at the moment. I have to say you must have v good solicitors if you were awarded legal aid in such a case and that I do find heartening although legal aid has been terribly restricted these last two years.- But hey we seem to speak the same language and it would be great to try and get something moving somehow.

Sorry to hear you were so down last night. I honestly believe a recurrence is worse than an initial diagnosis – it slew me until I spoke to Patrick again in desperation. However if you’ve got over it once you can do it again and more and more is available.

Ziggy does hyperthermia – whole body and local. I had it on my tumour locally.

Chris said today that things will change in the next few years and he reassured John that he could keep me going until things become more accessible to everyone. In some ways I am so angry about all of the above that it does energise me not to give up.

Yet again I’m rambling – it does help though to rattle on to someone who has such insight.

Take care
Margaretx
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Dear margaret,

First of all – let me say how well you write!!!!!
I do hope you are keeping a journal as I believe all that you are going through is to further the cause for good – and as you said all this gets our fight instint going and the determination is really great for the immune!

Thanks for clarifying about the PDT – I did some googling and came to the same conclusion that we are still a ways behind – altho I noticed that if one has throat and neck cancer or prostate the NHS is funding that at the college hospital…..I had intended to phone them later and try to find out more…..we’ll see.

I had heard about Dr. Kingsley – a friend went to him back in 2001 – he was always on my list but even then funds were low – That’s how i have managed to get legal aid – no assets – no car, no house, no savings……although i must say they keep asking me for bank statements…..I think they think I have a secret stash somewhere – dare i tell them it’s all stashed away in my mind!!!

It sounds as if you are in really good hands Margaret and your wound is healing well –

I looked at my ‘ battle site’ , as I call the breast that was and actually did a little video to document the before and hopefully the ‘after’ from whatever is my next move…..and then i thought – perhaps i should film my treatment in malaga and then I’ve got ammunition when I go to the press. I certainly do not want to get the good guys in trouble – and as you said – I am the perceived ‘victim’ in this. Being an x actress – I would love my day in court. ( I was hoping to have dear Lynn Redgrave on the team as I worked with her but sadly she didn’t make it.)

The thing is that I have been begging the NHS since 2002 to ok PDT – three times I applied and they kept turning me down even when I would have cost them a fortune by now had i accepted herceptin etc…..so far i have had no ‘treatment’ on the NHS – just blood tests etc…..When the iscador i get from the NHS homeopath was threatened i could not stay quiet…..I am sure they have my name on a blacklist……

Earlier this year when i was desperately trying to find hyperthermia on the NHS I found an article online with the Daily mail about a BC patient who was shaming the NHS into re-instating hyperthermia at the hammersmith hospital……I was overjoyed but on further reading discovered the article was old- from 2003 i think – and the lady in question had turned up at the Hammersmith hospital one day to find the unit closed. She spent all her savings going to germany…..The bottom line was that someone called dennis smith I believe assured her the hyperthermia equipment at the hammersmith would be re-instated……I googled Mr. Smith and came to find out that – he did no such thing but his overall salary for a month of shuffling papers here and there for the NHS was 250,000pounds!!!- the lady sadly died….That really got me going…..(I must dig up names etc.-….the thing is one only has a few good hours in the day, and boy these days are flying by……ok thats me signing off!!!)

so good to talk……and yes Dr. Chris is right – with all you are doing you can surely trust that you and John can keep you going forever eh!!!!
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Dear Pauline
Many thanks for your email of last Wednesday. I am not sure where the time has gone but i always seem to be catching up with myself at the moment. The wound is changing after hefty doses of tumeric and the top looks as if it’s going to come off soon so it all needs so much more attention…….

I admire you tremendously in all that you have done and are doing. This court case will be very important and establish a really valuable precedent if you win – so if it is not settled out of court I hope you have a really good day in court.
The lack of PDT on the NHS is so wrong. I do intend to try and find out more once I have this wound under control. It really needs some sort of patient’s movement. You are right there is only so much time one can cope with researching and contacting organisations when trying to cope with things together with trying not to get stressed as that is so bad. Sometimes I think it is only the coffee enemas that keep my mind balanced at all!
Thanks for your comments on my writing, I really just go into a stream of consciousness and couldn’t write anything consistently unless I had confidence in the sense of the person going to read it! I would hate to have to deal with adverse comments.
Really tired tonight – so I will sign off now
Take care
MargaretX
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Hi Margaret,
Just wanted to send you this – not sure if you ever watched the Burzynski film……

Also – there is a woman- forgotten her name but the title of her book is CRAZY, SEXY, CANCER…..she’s american and has a great website – did a documentary- became a best selling author and really bouncing with good energy –
Also – Sarah Horton i think her name is – she has a book and website with blog etc – from liverpool – BEING SARAH – both inspiring…..Sarah is just undergoing breast re- construction – has the same oncologist as me in UK altho we have never met….She is quite pro NHS- but also now trying to change the system….
 

I know what you mean about the coffee enemas – where would we be without them!

Well – my news is that after arranging my trip to malaga flight and all for the hyperthermia – at the 11th hour I found a clinic here that is doing them. The doctor – Raymond Hilu has a big center in marbella but is affiliated with a new unit here …..So – after sleepless nights of what do I do – I followed my intuition and cancelled malaga and have an appt with Dr. Hilu this afternoon with the hopes of starting treatment tomorrow….
I shall keep u posted!
Keep your spirits up and speak soon
xPauline
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08/11/11
Hello Pauline
That is such good news about the hyperthermia treatment. I guess it is whole body? in which case do let me know how you get on.

Goodness there is so much out there. No i haven’t watched the Burzynski I shall look into it. Also the other two women sound great too.

I must do some more reading – there is always more out there and it is great to here about people winning.

Must go as I have so much to catch up on as what with acupuncture 3 times a week and Siggy twice I am in a complete mess!
Take care and all good wishes for the treatment
Margaret
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13/11/11
Hi Margaret,
Just a quick update!
I had my appt with Dr. Raymund Hilu –

-The main things that stuck in my mind from our albeit brief session were :

That i work hard to address the issue of why the ‘recurrence’ happened – and eradicate the possibility of it coming back again.

In his own words he says that these treatments are so expensive and we cannot afford to keep doing them- both mentally and financially – as each time it r-occurs then comes the disappointment and the stress of what do i do now…..And so – he is recommending a session with Dana bross who has a beautiful centre close by and she will help my brain to get a little happier……(I see her tuesday – so will let u know how it goes)
Dr. hilu also said that I need to learn to say NO and for the next 3 weeks i need to act as if i am in hospital – saying no to anything i do not want to do……That in itself made me realise that I have been trying to sort out everybody elses life and stretching myself again. This is a hard one for me as I like to keep active and its a part of who i am – wanting to help others……But i think i got the message this time and for this period in my life when i really release and transform – I know that you are probably in the same boat as you go back and forth to your appts…..This really is time for US!

And so – I had my first Hyperthermia last wednesday! OUCH – I hadn’t even measured the likelihood of pain into the equation!!!! I came right back and did the blessed enema and then had a lazy day in the hospital of my mind!

– It was certainly less painful than the ECT – and 1 hour I can handle! The second was less painful and 8 more to go!
Anyways – here we are in sunday – I’m moving slowly and trying to deal with the inflammation with homeopathy…..
Luckily javier has replaced the laptop so for the moment we have intnet access…..altho I don’t much feel like too much of that…..Hopefully i shall do some painting……the rain has come so maybe not…….lazy sunday???? – YES!
Be well Margaret – and KEEP THE FAITH!!!!!
xPauline
…………………………………………………………………………………..
Hello Pauline
I am sorry it has taken me so long to get back to you – but I hope you have been doing as you said you would and living in the ‘hospital of your mind’. What you said has resonated very deeply with me and I do so agree with all that Dr Hilu has said. The mental stress induced by both financial worries and not knowlng what to do about a recurrence is awful. Quite ridiculous really as I had worked out that is was stress (albeit of a specific nature) that caused my recurrence. But really I have just replaced it with more stress – crazy!
At least now I have reduced my appointments – and the wound is healing well – thanks so much for your advice. Like you I am looking forward to just relaxing for a time and going to some Buddhist meditation sessions near by. It will be distracting if nothing else and the little meditation I have done (self taught) has helped. Also EFT (Emotional Freedom Technique) can really calm me down. You just tap to a ‘set-up’ phrase on various acupressure points on your head, neck and hand. I had a book but I am sure there is loads on the net.
I also had no idea that there is a pain element to the heat treatment – it was claustrophobia that concerned me. I do hope it is all going well and also that you are taking things easy – painting – and getting in touch with all that really makes you you.
Thanks again – your email was very timely for me and got me thinking!

Take care and ‘hold on to the light’ as someone once said to me.
Margaret

——————————————————————————–
Date: Sun, 13 Nov 2011 12:12:15 +0100

Hi Margaret…….

I have just spent the last 5 minutes finally typing a long email to you and with one swift peck of a button it has disappeared and not showing up saved- DIOS MIO! – thats- oh my God in spanish!!!!!!!!

Oh well……here i go again……excuse the punctuation……

I am well – and here it is sunday again – just had spelt toast with lashings of butter!!! – I use my sundays for treats otherwise what the heck is life all about!!! Hopefully u are a little more disciplined – I did a very good Skype session with a luvly guy in New Zealand – Greg russell – who healed himself with tapping and offers free sessions to help people identify and tap away there issues……it worked very well but i am not disciplined enough to keep it up unfortunately but have lots of friends who do……

Sounds like you are healing well – so keep it up!

My hyperthermia sessions are less painful as my sensitivity adjusts – i think the initial pain came from scar tissue and also the sweat can cause a burning…..I am doing the local hyperthermia not the full body so no claustrofobia…….

oh oh……Margaret – I think the server is closing down again…..if i suddenly disappear mid sentence you will know why.

Before I forget – I was contacted by an art student from the univ of bournemouth wanting to use my experience in her thesis on women who use art as part of their healing. She is looking ofr others so if you yourself do anykind of art or know of anyone who may like to get involved could you let me know and i’ll put her in touch……

I will keep this short as I really don’t trust the computer today…..just wanted to keep u up to date…..

I shall be back in UK dec2 so will fone you once i am acclimated and we can have the long awaited chat.

lots of love…..and yes – LETS HOLD ON TO THE LIGHT – I shall put that on a touchstone!!!!
xPauline
……………………………………………………………………………………
Hello Pauline
It’s good to hear from you! I’m glad the treatment is going OK now, I have had the local hyperthermia and yes it can get hot but that was before I had scar tissue and the very idea makes me feel quite unsure now. No doubt once healed at some stage I could contemplate it.

I am constantly losing my emails half way through and I have no idea what I pressed to make it happen – I have a love/hate relationship with computers, mostly hate. Like you I am not disciplined with the EFT since I usually only remember when I am relatively OK and then think I should have been doing at such and such a time. Sorry I can’t help with artistic sufferers – I wish I could – It is possible that some people have kept quiet but I don’t think so. I try to keep up with music and play the piano and I do feel that helps – but again I have to be feeling better to start with!

At long last I have got to a week with only 2 appointments – it feels great, although loads of other things that I have long neglected need doing. I was feeling so much better last week that I cleaned out the fridge and 3 kitchen cupboards and knocked myself out for 2 days – completely exhausted so now I am taking things very easy again. The wound is healing brilliantly with the tumeric but my muscle strength is really diminished in my left arm – hence the difficulty I experienced with all the activity!

It’s good to hear that you will be back in the UK on 2nd December but I do hope you won’t find the change in the weather intolerable. having said that it was snowing this time last year and it is relatively mild but dark. I meant to tell you that I did watch the Burzynski film – it didn’t surprise me except in so far that the harrassment went on for so long.

Have a good journey and yes it would be good to have a chat on the phone once you are settled back here.
Take care
Margaret x
………………………………………………………………………………………….
Hello Pauline

I had meant to email you long before now to thank you for ringing last Saturday. Are you back in Spain?

It really was good to talk to you and hear all that you have done. I think that you are coping brilliantly and I’m looking forward to reading your book. Just now I seem to have been overtaken by a last minute rush to sort Xmas as our daughter and granddaughter are coming after the holiday for three days and we live such an idiosyncratic life that any prolonged visits mean moving things and adjusting our lives. Sounds ridiculous and it is very good for us to have to adapt. It’s also amazing what you find when you start clearing out spare rooms etc. Notwithstanding that I am really looking forward to seeing them.

I don’t know what it is like in Spain but the general gloom here is almost tangible – everyone is fearful of what is happening to the euro and the financial situation generally. Actually most people are just getting on with life (apart from freezing in their houses because of extortionate heating bills) but the news and media are constantly evaluating, analysing and generally giving out doom laden forecasts. I would hate to be embarking on life as a young person at this time. Bring back the 60s I say! I believe we really were quite lucky to be able to walk out of a job in the morning and get another by the afternoon.

I have promised myself to read your book in the New Year and take up Buddhist meditation with a local group.

I hope you have a good Christmas with your family and the New Year brings us the treatments we need for free and you success in your court case.
Take care
Love
Margaret x
………………………………………………………………………………………………Hi Margaret,

Just wanted to touch base and send good wishes for continued good health for us all!

I survived xmas and made my way back to BCn for new years…..Then there was the annual Kings day here which involves more of the festive indulgences!

This week I started to pick up steam a bit and trying to keep motivated….

I intend to call Christopher Etheridge when i get back to UK nesxt week as i’d like to get some of the curcumin paste….I thought i had the phone number but do not…..

Could you let me know please.

Hope you had good holidays and that all continues well,

xPauline
………………………………………………………………………………………….
13/01/12
Hello Pauline
Good to hear from you! I know what you mean about the festive season and temptations. I hope I am back on track now, it helps that the house is no longer filled with cheese, chocolate, mince pies etc. etc. However I am, as I type, waiting for a new organic veg box to be delivered from a new source and have great hopes of really healthy greens being on the menu this weekend and not to be found still languishing at the back of the fridge by next weekend!

Here is Chris’s number 0777941 4099

He can see patients in London or at his house in Epping. He also does telephone consulations and a friend who also wanted the Tumeric Cream was told that he needs to give a consultation (which is always worthwhile with him) in order to prescribe it which is £60 and the cream is £30. I am going over next Wednesday to see him as he is only 16 miles away. I need his level headed approach at the moment to decide what to do next. He is always so encouraging and understands the treatments.

Let me know if you would like me to mention to Chris that you will be calling him. He will then know that you are on the side of the angels. You will need to book a slot anyway, he has an able assistant called Ben who takes the calls.

Luckily it is sunny in the UK at the moment but overall January is an awful month and keeping a balanced perspective on things is quite a challenge so as well as eating sensibly I am also resolved to take time out for myself and do simple relaxation exercises, affirmations and flood my cells with helpful happy thoughts even if I only last a few minutes a day since I do really believe it all helps. At least it gives the feeling that I am gaining control again which I believe is so important.

Thanks so much for getting in touch, just typing my thoughts and knowing you understand has really cheered me up!
Wishing you a really healthy, motivated and relaxed New Year
Love
Margaret
……………………………………………………………………..
Date: Thu, 12 Jan 2012 15:04:12 +0100
Hi Margaret
……Yes – it’s good to write the thoughts down…..I am sadly behind with my diary these days, but always more on the to do list.
I find myself snugling down more in the cold mornings and doing my feel good meditations under the duvet. it doesn’t always work though and the other day…..i woke up determined to get stuff off my chest – Aha!!!! Poor Javier was in the receiving line – but I felt much better after and continued on to address another connected issue with someone else – this went back years……So I can only be grateful that the mind and body are cleaning house and that as the I ching says – the bad times are consuming themselves!
I have just been reading about Antiogenesis again and really feel that I have some blood vessels that need starving but I am reluctant to do Avastin…..
Thanks for chris’s number – Yes – Please mention me as i will definitely have a fone consultation with him and get the creme.
I would also like to ask him anout his thoughts on the doses of the homeopathic meds – carcinosin, phytolacca and conium. I have had varying reports and recently my homeopath increased the dose but i’ve just stopped as i felt a nausea in my stomache……Not sure if it was related to that (could have been the mince pies!- hee hee) In any case its gone now but I’m hesitant to get back on it (note to myself to use the dowser )
I see my oncologist friday – it’s been 18mths – I shall be interested to see if there are any new developments with NHS treatments.
I haven’t seen it yet but the new iCON has a piece on Hyperthermia treatment- my sister said it says that it is most effective for newly diagnosed cases. I do feel that it worked well on the deeper recurrence but has not made any difference to the chest wall recurrence……I would still opt for more of it were it available on the NHS……

Good luck on wednesday then – and Let us know without a shadow of a doubt that ALL CONTINUES WELL….
<em>Live full and fear less,
xPauline
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16/01/12
Hello Pauline
just a quick reply to your email and all the news. I will watch out for the new Icon – it sounds interesting.
I will definitely mention that you will be calling to Chris and I had better tell you that he isn’t into homeopathy – not that he doesn’t respect people who use it but it is outside his own experience. However he does produce a herbal product called AntiVas which you will quickly see is an anagram of Avastin. I am sure he will discuss it with you.
I hope all goes well with your Oncologist next Friday and that she is supportive and open minded.
I am completely frazzled tonight! The cold weather (6c) is getting to me and all I want to do is sleep so I won’t prattle on. Have a good trip over and bring some warm weather with you please.
Take care
Love
Margaret
…………………………………………………………………………………………
Hi Pauline
I had meant to get back to you before now. I’ve had the current flu bug for three weeks now and have it on good authority that it lasts about 6 weeks at a chronic level. Every so often I feel much better, go out and start coughing again and then have two days feeling wiped out. No more complaining from me it’s just an explanation for inertia.

I thought of you yesterday and do hope that the appointment with your oncologist was productive and supportive. I am impressed that you are still seeing the same one – she sounds unusual.

I saw Chris on Wednesday and I did mention that you might well be ringing him and gave him a brief outline of how I came to be in contact with you and that you’d been actively on a healing programme for many years and were pretty knowledgeable by now.

I had a good consultation with him and he is pleased with the wound healing. I am pretty sure that I shan’t be returning to Germany since I now have a small pea-size lump just above the wound and the four pimply bumps that Giesen treated with PDT have returned! I clearly have not done enough but there again his approach was pretty aggressive and in some part, I am sure, experimental. Had I been able to speak German I would have a better idea of what was going on. It is so difficult to know what to do next but a scan of some sort would seem a good idea to know where one is in the scheme of things, I hate having them. I agree hyperthermia looks good it would be great if they could get their act together in the UK.

The new Icon magazine is good and Prof Sikoura openly acknowledges that we are way behind Europe in treatments and good outcomes. I think the enormous cost of the conventional treatments will inevitably mean that the less costly ones will have to be tried. In the USA the insurance companies are finding it hard to fund the treatments and pressing for alternative research.

I’ll keep in touch if I hear of anything useful and really hope you gain something from your appointments. We shall just have to carry on taking a positive and intuitive approach…………….

Take care
Love Margaret
……………………………………………………………………………………
24/01/12
YES – POSITIVE AND INTUITIVE APPROACH indeed Margaret!

Thanks for filling me in…..Hopefully your flu is a tester for your immune system – I think they call it a HEALING CRISIS……So keep the faith!

Yes…..those niggily little pimple things…..I’ve been getting a fare share of those too…..I did notice extra itching last night after 3 nights binging…..dare i admit …..to the leftover chocolates from xmas piled high in mums stash……not even the dark stuff……i eat that first then dive in for the milkies……grrrrrrrrrrrrr!

The good news is that the visit with my oncologist went well – She didn’t read me the riot act but was very happy to see me….Good new that all my bloods were normal and my Ca 15.3 also……But she thinks that doors are still locked to applying for fotodynamic T. or Hyperthermia…..She says that before they agree to that it will be the targetted radiology…..which I had just finished reading in Sikora’s piece costs 70,000 a pop!

I joked with her saying just give me the money thank you very much!!!!

Anyways……I finally agreed for her to take a little patch from the wound to see if its oestrogen receptive. I’ve always said no because all they could offer me would be drugs, but this time i said ok then……and I’ll have the results in 2 weeks. Of course its the same drugs on offer – latrezole and a herceptin maybe which I would refuse but at least I can research the alternatives…..the fight continues!

Yes – I did call Chris Eth…..His assistant has sent me an email….which i must reply to….They no longer have telephone consultations apparently and i really cannot get to his practice so we shall see……I have just skimmed the email so need to get back to it….

I shall henceforth stop here and hope u r feeling much better1

ps……good piece in the guardian yesterday confirming the controversial mammogram
debaucle……Exciting times

xxxxxxxxx P
………………………………………………………………………………….
24/01/12
Hi Pauline
That is really great news about your CA15.3 and normal blood tests! You must be really relieved. I know what you mean about the oestrogen inhibitors but I think it is a good idea to to know the status anyway. I take indole-3-carbinole in the form of Dim Pro which is a natural form and I have been advised now to take Red Clover tablets by Chris as they are a natural antioestrogen – there were some negative reports some years ago but he assures me they work and are quite safe. So there are options out there if you turn out to be positive. Like you I’m not sure about Herceptin.

Of course they will do targeted radiotherapy before hyperthermia and PDT on the NHS – there is loads more money to be made out of it with really really expensive machines. I can’t believe the cost of treatment!

Like you I haven’t been exactly vigilant with the diet due to a combination of the flu and weather. The chocolate probably flooded your systems with endorphins which will do no end of good to your immune system – so don’t stress.

I hadn’t realised that Chris no longer did phone consultations and as you say he is a long way from you.
I take comfort from the fact that every other person down here seems to be coughing and spluttering with this bug and they all complain it last weeks. I take comfort from the fact that I was told that if you succumb to these bugs at least the immune system is working well enough to recognise it has to do something!

Good luck with the test results, at least if you are positive it does give you another line of attack by depriving it of what it wants. Your oncologist sounds really good. Mine just said she had never heard of PDT when I asked and all she would treat me with was letrozole!

Never mind her ignorance is basically her loss as well. Things will change and I think quicker than is generally realised. I haven’t read the Guardian on mammograms but I was told some time ago that the guy who invented them publicly announced that he was wrong and used, as they are, were more dangerous than helpful added to which there are numerous false positives apparently.

Take care
Love
margaret
…………………………………………………………………………………….
02/02/12
Hi Margaret,

Please forgive my tardy reply……and now I am in the library with a clock ticking so I shall get back to you at the weekend….

Thanks for all the good info – I shall see my oncologist tomorrow ao we shall see whats up doc!

I’m the same as you not wanting whats on offer so bring on the clover…..I never thought about the dim pro – it seems cheaper than the indol…..

Keep warm this weekend…..speak soon,

xPauline
…………………………………..
05/02/12

Hi Pauline
I had meant to reply before now. I do hope that the outcome of your oncology appointment was good on Friday.

I’m still laid low by this flu bug – basically post-viral syndrome – no energy and very little brain power at the moment – I’m hoping that it will clear soon – so frustrating cos when I do feel as if I could do something, if I do it I’m back to where I started! Loads of snow today here in the South – hope it’s all OK where you are – you must miss Spain.
Take care
Love margaret
……………………………………………………………………………………………
08/02/12
Hi Margaret,

Well i can’t blame my lack of brain power on the flu – but i am moving in slower motion these days…..I would think of it as a hibernation what with all the snow – just know that u will awake to your dare i say it ‘normal’ self when the time is right.

I am back in barcelona – arrived 2 days ago and it is icy here but no snow as yet.

Fridays appt with my onco was very interesting………….

I wasn’t surprised that YES I am oestrogen positive- Her – negative, but also I was a grade 1 which I took as a good sign..

She was actually quite astounded and said that she wondered if I had been a different grade at the initial diagnosis 11 yrs ago and managed to lessen it with all that i have done – of course we will never know. She also did a K167 test which showed the lowest she’d ever seen – 1%…..which was apparently good.

So of course the only thing she could offer was the LETROZOLE which I am reluctant to take. I did consider it briefly as a trial – an experiment for 2 mths to see what happens and then write about it – but I changed my mind and left the UK without getting the prescription filled. I thought i would get on all the good alternative stuff and worry about the mounting debt later……

You mentioned Dim pro as an alternative to Indol3carbinol – there seems to be several brands – any you recomend?

I shall also do redclover and shitake and really make a concerted effort to beat this thing back. I started with green clay again and it feels very comforting….I wish i could get back to drinking it aswell, I shall probably start to do some barleygrass smoothies and gulp the lot down……so I shall keep you posted. I just read an article on how good asparagus is so I shall add that to the list.

Well i shall stop here as its time for a rest
Stay well and keep the faith
xPauline
 
…………………………………………………………………………………………..
09/02/12
Hello Pauline

Thanks so much for getting back to me with all your good news! I am at last coming through the virus and whilst extremely physically challenged still – my mind, such as it is, is coming back!

I think your NHS oncologist is amazing and so supportive, you have no idea what I have come up against and why I no longer have one!

She has done tests which, even if they are routinely offered are certainly not discussed and she probably risks quite a lot for taking such a patient centred and supportive approach. I am so pleased that it all looks so unaggressive and the grade is quite remarkable for a recurrence. I am Grade 2 ( at least it hasn’t gone up from first time around which I’d never really considered till now).

OK:- I have looked at the other Dim Pro products and they do vary in price etc. I have no idea how to compare them so I can only tell you about the one I am taking on advice from Chris and Siggy who rate it. It is called (obviously) Dim Pro and I get it from Antiaging Systems an american firm that is really directed at supplements to stop aging americans with degenerating health conditions. You can probably order it on the net but I ring a UK number 0208 1232106 they can be slow so ensure you tell them you want it quickly. Their website is http://www.biogenesis-antiaging.com and there is a comprehensive run down of how it works and what is in it. It isn’t the cheapest, of course and one other thing they recommend quite a high dose but I’ve been advised that one twice a day morning and night is sufficient.

Another supplement that I didn’t mention (and doesn’t cost the earth) for oestrogen balancing is Calcium-D-Glucurate. I can’t take it because I have too much calcium in my blood anyway but I wish I could. There is loads of info on the net. And of course the red clover which I looked up today as well and it really looks goods. I looked at the UK biocare site. I have been so dopey that I haven’t ordered it yet but I have to email Chris so will ask him if he recommends it.

Like you I don’t want to take Letrozole which as you say is all they have to offer us on the NHS. I was persuaded to take another aromatase inhibitor a couple of years ago and the then tumour did shrink. I took it for 6 months and 6 months after that I developed a macular hole in my right eye. I can’t prove the connection but there is a know connection to vitreous detachment in the eye with tamoxifen and a guy in Canada has done convincing research that shows aromatase inhibitors have the same effect but of course no-one wants to research it. I read a letter from a woman in Icon who developed one 4 weeks after being on Letrozole. I think I have told you this before – sorry if so. The operation was awful and involved a gas bubble being inserted in my eye and me having to lean face down for 50 mins of every hour for 2 weeks so the hole would heal from the pressure of the gas bubble. I never want to have to go through that again! I now have a cataract as a result which is highly predictable and am waiting to have it removed. The complication might be rare but I suppose they think that you can sacrifice your sight for not progressing with cancer.

Your immediate plan sounds good – green barley is brilliant.

Hope the weather warms up soon both there and here – at least Spring is round the corner……
Take care
Love
Margaret
……………………………………………………………………………………..
Date: Wed, 8 Feb 2012 15:12:52 +0100
Hi Margaret
So good to hear that you are surfacing from the challenge……We just have to forge ahead –
Live full and fear less seems to be my motto at present…..

Thank you so much for all the good info – I have been reading lots about the Dimpro and will order today – and I’m just now researching the Cal d glucanate…..I’m also thinking of reservetrol…….Ay ay ay – there’s so much out there and I seem to be thinking rich these days……I should have been on a lot of this stuff previously but money was always an issue. Since my partner javier has definitely decided that he wants to move to Asturias where he was born and where there is an empty house waiting for us we are putting plans in motion to move by the end of the month. I am a little anxious when I think about the move but once we get there we can have a fresh start and live closer to nature…..It’s actually the town where you first contacted me……..of course I will have to keep my base in the UK with trips back and forth as per usual…. but I’ll cross that bridge later…..
You did tell me the story of your experience with your eye…..thanks for the reminder about the side effects of the meds…..i had been trawling the web looking for testimonials and most do seem to agree and theres a lot of women who are complaining how their characters are changing and depression and so on…..So a definite NO on the letrozole for me – I prefer to do it this way and trust that my body has the masterplan filed away for my long term survival.

I went to the herbalist here and got red clover tea so I’m drinking that everyday – I did so yrs ago and then it went by the wayside…..I also have some tabs ordered from an organic herb company in UK…..they seemed the best option. I also got some graviola which i read about yrs ago but slipped thru the net.
Yes – in retrospect I do have a wonderful oncologist in Alison Waghorn – and she is always open to the information I bring her – I must not take that for granted….She works tirelessly- the clinic is always full to the brim. They finally have the ICON in the waiting room and I noticed people reading it and in one ladies case she seemed to be astounded at the information therein…..So we must be grateful that we are already ahead of the game and our immune systems are growing stronger day by day!

Not sure if i mentioned the tip about thumping one’s thymus every morning…..got that from Luise Hays……I leave a note on the bathroom wall so that I am reminded…..

Thanks again for the speedy reply margaret…..You truly are a treasure trove and a survivor at that!

Speak soon,
.xxxP
…………………………………………………………………………………………….
Date: Mon, 13 Feb 2012 15:23:
Hi Margaret,
It will take a while to get the DimPro – but you are right it does seem the way to go. I’ve had the clay poultice on every day and last night I really felt it drawing. I remember now when i used it before it really opens up the wound to a raw state but so far its manageable if not a tad irritating trying to keep the darn thing in place……Such is my life at the moment! The weather seems to be warming a little – and grateful for the sun…..

Had a bit of a meltdown over the weekend when i thought i’d lost my purse. I almost gave into the drama, circled the same block and shops 3 times in a state of disbelief, thinking that I was being unfairly tormented….Why me again!!!!!! and all that…….Finally had a little cry…..then decided to drop the subject until monday when after canceling my bank card I went to the local fruit shop where I had discovered it lost and the shopkeeper lit up when he saw me and confirmed that he had found it wedged in a corner outside the shop, obviously just dropped out of my bag! The whole incident has served to boost my energy………..and for sure I will be treading much more consientiously from now…….Well thats my little story for the day…..Hope alls well with you and that spring is bringing us both radiant welbeing!!!!
Thanks again,
xPauline
…………………………………………………………………………………………..
15/2/12
Hello Pauline
I’m glad you got the Indol3 and have something to be going along with. You seem to be coping very well and learning to cope with the unexpected things is a real challenge to keeping oneself on an even keel. I’m having to be very positive at the moment since unexpectedly I was admitted to hospital on Tuesday night.

It turned out that my breathlessness which I thought was due to the viral bug etc was a pleural effusion on my left lung. So after going to the GP to ask for a routine chest Xray or so I thought I was admitted as an emergency and had to have a chest drain inserted. All very dramatic but the care was very good. I was discharged yesterday. I am left with a lot of uncertainty as to the cause of the effusion and as I have no ocologist now i have been referred for an urgent CT scan and appointment with a local oncologist in two weeks when the test results have come back… All quite scary and at first I was thinking the worst until Chris explained to John that sometimes in breast cancer the malignant cells can migrate into the pleural cavity and the body, as a defence mechanism, reacts by creating an effusion (in my case 3 litres! – no wonder I was breathless). Anyway I have been told not to think the worst, they will check for malignant cells. Interestingly enough the doctor I saw worked at The Hammersmith hospital for 3 years in oncology and he was really interested in the PDT and Galavano treatment, such a breath of fresh air in the NHS. He suggested that I try and find out if an effusion can be a result of the treatment. Obviously not in your case, and I did have the electrode treatment additionally which is different – electrodes front and back over the lung area and literally running a high voltage between them for three hours several times. It makes one think.
It is getting warmer here too and I am trying to catch up with myself so to speak. Still completely knocked out but much better than yesterday after the all important enema! I suppose life would be extraordinarily dull if nothing ever took us by surprise but I wouldn’t mind having one year of non- events and, like you, run the risk of falling into the why me paronoia mind set. As you say’ live full’ (a trifle difficult at the moment!) but defo ‘fear less’!

Sorry to hear that the wound area is still troubling you – I found dealing with mine a constant responsibility that I could have done without and it definitely eroded my capacity to remain positive. Hopefully the clay will have the effect you want soon.

We are living in strange times which I suppose the Chinese would say was good. “May you live in interesting times”. Bring back the 60s I say – perhaps because we were young but everything seemed so simple then and people were content. Sorry I am wandering it must have been all the morphine they gave me – I chose it over paracetamol because I was worried about liver effects – but never taking anything anyway I guess the little morphine they did give me had quite an effect!!!

I will stop my rambling – it’s great to be able to email someone who at least as an insight into all this..

Take care and hold on to your purse!
Love
Margaret xx
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Date: Thu, 16 Feb 2012 15:04:25 +0100
Gosh Margaret ……and here’s me rattling on about my purse!!!

It would seem that we have both undergone purification and have been well treated along the way – as in your experience with the NHS this time. Sounds like that doctor who worked at the Hammersmith is a Godsend – Let us assume that you will find such a treasure for your oncologist. Just remember that it is your body, and it is you ultimately that calls the shots………You are so well informed Margaret with all your experience in both areas – orthodox and alternative. And yes – given the work done on the lungs with electrodes et al…..I could easily assume that the lungs must be involved.

The main thing is that you keep your spirits up as you are doing- high praise to the coffee enema as always. Two nights ago I felt such a strong sensation of the breast with the clay poultice – it kept me awake, but the next day the area seemed better and even though the area is raw it feels like an organic healing is taking place. I think it is a lot to do with the vibrations of the clay, and of course the nature of purification itself – to seem worse before it can better. Allow yourself to think exactly that for your lung!
We are in the process of arranging Javier’s move to the north – Asturias……and that’s ushering in a certain stress, but I am determined to hopefully navigate through with ease……as you said…..to continue to live in interesting times.
My mind keeps wandering off to imagine growing shitake mushrooms and other herbs and such to keep my body in optimum health….
I suppose this is a time of visualisation really….optimum visualisation………………Now I’m rambling and all this without the morphine…
I think that’s a wise choice about the morphine by the way……
Bueno Margaret…..may you certainly continue to get stronger through these interesting times,
Stay well and much love,
Pauline
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WORLD CANCER DAY – FEBRUARY 4, 2013

4 Feb

Not only is it World cancer day today, but for those interested in astrology- Jupiter, planet of good fortune goes direct today……So – let us find good reason to keep this fight going and dare to uncover some dark truths that have been clouding our individual and collective journey’s with this darn disease!

World Cancer Day is a chance to raise our collective voices in the name of improving general knowledge around cancer and dismissing misconceptions about the disease. From a global level, we will be focusing our messaging on four myths. Learn the truth and supporting evidence, by clicking on the myths below.

Cancer Myths :

Myth 1: Cancer is just a health issue

I seem to be uncovering all sorts of exciting news connected to surviving cancer lately –  I hardly know where to begin!

Since I really want this to be about personal stories I have decided to use what comes into my radius on any given day and then hopefully expand on it.  Having said that; the truth is that I am quite a ways behind with all that is stored in my inbox, but hopefully intuition will kick in and the light will lead kindly…

It was the October of 2011 when I was first contacted by John Stuart whose wife Margaret was struggling with breast cancer issues.  They had read a piece I had written for the ICON magazine at www.canceractive.co.uk; and were interested to learn that Margaret and I had had a similar ECT treatment, albeit mine in Spain and Margaret’s in a clinic in Germany.

John has kindly agreed to let me use the many e-mail conversations that went on between Margaret and myself over the ensuing months.  Apart from the emails back and forth, we had several good phone conversations, and I always felt empowered after our communication.  Our common bond being that we had been dealt this terrible blow of a cancer diagnosis but were determined to leave no stone unturned when it came to researching what was ‘the latest’ information available to share with others.

One of the last emails I sent to Margaret was to ask for an image of herself so that I had something to focus on to send her healing light…I never did get to see her face as Margaret sadly and unjustly lost her fight some 10 months after we connected.  Fortunately her  husband John, despite still being in mourning is continuing to bring to light some of the wonderful information available for those looking to heal ‘outside the  box’ , as it were, such as What Doctors Don’t Tell You: Alternative health treatments  …www.wddty.com

Here then is how our friendship began :

Dear Pauline,

                   I am writing to you on behalf of my wife, Margaret, who has just undergone a similar electro-galvanic treatment to you (as outlined in ‘Icon’ magazine) in Germany.
     The resultant wounds are a bit worrying and after-care a bit thin in the UK – as you can imagine!  We are fortunate to be able to go for specialist cancer treatment with an exceptionally good private alternative cancer doctor in Sussex who has a pile of ‘Icon’ magazines on his reception desk… which is how we found your very useful article! Margaret is being pressed to return to Germany (by the German Clinic) for more treatment – this time even more invasive – and is concerned as to the healing process and would be incredibly grateful to be able to e-mail you for advice and to compare her experiences with you… or, would it be possible to ring you and talk directly? An e-mail response would be much appreciated in the first instance! It is not the sort of treatment that is within the experience of many doctors in the UK.
     You will appreciate how incredibly stressful such an experience can be – even for the most balanced and level-headed person, as Margaret is – especially as one is working against the grain of the whole NHS procedure in the UK and one’s GP not being entirely enthusiastic as to what is still seen as in the UK “alternative” treatment  (though I’ve no doubt we will catch up here eventually) … all of which I have no doubt you will understand… so I’m hoping that you will be able to find time to help, to some extent, simply by being able to empathise with the experience and offer any practical advice on wound treatment?
 Yours sincerely,
 John Stuart.
Dear John and margaret,
The chances of me being online at this moment are rare as I am in northern spain in a tiny little village with my partner…..
We had our computer stolen last week and can only get online now and again at the local int place…..
I will be glad to be of any help once i return and will fone you from the Uk – I get back in 2 weeks….
For the moment not knowing much about margaret’s case I can only say that – yes …. the wounds are quite severe but manageable in time……I mixed green clay and put that on for a while….
It really is a long journey and once you are on it…..one needs to keep the faith and KNOW WITHOUT A DOUBT …..that you are indeed a survivor and all is well!!!!
hopefully margaret is following a really restrictive diet at least until the wound starts to close and hopefully forever after.  I found my wound closed of its own accord about 6 months after but my treatment was spread over 9mths because of finances…..
I have to tell u also that I had a slight recurrence last yr – and am now in search of hyperthermia – has margaret had that?  it’s difficult to find in the UK on the NHS – actually impossible – but is there privately…….
Also I wanted to do sonofotodynamic therapy but again privately at the dove clinic 10,000pounds…..
Since this computer is so low….i find the blood draining trying to type…..forgive me but lets continue another time…..
In the meantime – do write and let me know more about margaret’s case!
I am always pleased to hear of others on the alternative path….there are many of us!!!!!
meanwhile- read all you can – LOVE – is the greatest healer –
coffee enemas help me a LOT!!!!
ok……thats it from me …..Speak soon,
Be Well,

Pauline

 Dear Pauline
 Thank you so much for replying when clearly the computer you have access to is causing some difficulties.  It would be great to talk to you and I look forward to speaking once you are in the UK. I am so sorry that you now have a recurrence – one just has to keep thinking of new ways to hit it and importantly  stay in control.
I had my galvano treatment in Germany under a doctor called Dr Thomas Giesen.  He is on the web. He treated a recurrence in my mastectomy scar of two small tumours (1.6cm and 0.6mm).  He uses photodynamic treatment using ‘photolon’ as the method of seeing the malignancy.  Two days after after treating the tumours (I did feel much better that evening) he used galvano treatment on the area and what was left of the tumours (although not palpable) erupted through the skin and have left two nasty holes!  The doctor I see in Sussex (also German) is Dr Siegfried Trefzer (known as ‘Ziggy)to all and sundry) at High Tree Medical near Crowborough.  He was my initial contact with Dr Giesen as he had one patient who received an obviously milder form of Galvano treatment prior to having a lumpectomy.  I also have an enlarged lymph node near the axilla and Dr Giesen wants to do three more photodynamic treatments on this.  On receiving pictures of my wound he still thinks he can go ahead.  Ziggy and I are not so sure and I hope he will be speaking to Dr Giesen tomorrow.  Oh yes, I forgot to tell you that Dr Giesen and his staff have practically no English – you just have to trust them! However we have no means of knowing how successful he is. He is quite delighted by the results.
Thank you for your advice about a restrictive diet, I am already quite good but have now cut out fruit and anything that may have some residual sugar. If you know of anything else I should avoid (apart from dairy) I would be grateful.  I do so agree, coffee enemas are the only thing that enables me to keep a sense of proportion. 
My original plan was to have the treatment and then go on the Gerson for as long as I could.  I know from Beata Bishop’s book ‘A  time to heal’ that the therapy is marvellous for wound healing but at the moment I am quite shattered and I know in need of both physical and spiritual support.  The financial aspect is alarming, we are both retired and need this attempt at treatment to be successful.
Anyway I will stop rambling on and once again many thanks for contacting us.
Take care
Margaret
( I just want to interject here and say that the charity TOGETHER AGAINST CANCER, that I mentioned in a previous post, are putting together a conference in October this year in London, highlighting THE GERSON THERAPY, with Beata Bishop, amongst others, speaking.  More on this later – but while we are on the subject let me recommend a wonderful documentary. (watch free on youtube)

Hello Margaret

Got back to barcelona monday night…..We had car troubles which inadvertently found us on the Camino de Santiago – The St. james Way – just overnight – but interesting nevertheless – more for the chance to reflect on why we were there in the first place?
Anyways – Just wanted to touch base with you and say that hopefully I can call you at the weekend.(since I won’t be back in Uk for a while) Is there any time that is best?
Thanks so much for filling me in with whats happening with you…..and who you have been seeing.  it’s always good to share information as you know….
I have been trying to think of something else that may help your wounds, but nothing new is coming altho I have just read in a spanish magazine about a machine called Quantam Milta – not sure if its available in Uk – seems like its used for healing tissue with burns etc.
i think the main thing is keeping your immune system strong – i do a lot of co Q 10…..
oh dear – i’m afraid you probably know of all the good supplements…..really I think we need to have a good natter and then see what comes up in the conversation….I’m not that good with computers lately…..
And so……..keep your spirits up……Keep up the good work and NEVER GIVE UP –
yes – you will have off days but just keep following the signs along the way…..
When did you have your masectomy?
ok…..thats me signing off
hope it helps a little,

xPauline

Hello Pauline
Really good to hear from you and thanks for wanting to have a chat on the phone.  I do agree it is far more worthwhile than tapping into computers.  My trouble is that I don’t even bother to get my own email account as when I had one I kept forgetting to check it and John at least does look at his from time to time!
My wounds aren’t getting any worse and may be improving slightly! I’m doing acupuncture with a great Chinese doctor and taking loads of supplements for the immune system, but more importantly, I think, I am now over the virus we brought back from Germany with us and really laid me out initially.
Look forward to talking to you and many thanks again
 Take care
 Margaret
 PS  I had my mastectomy in 2005.

I shall continue with Margaret’s emails tomorrow ……..let us make today count!